The Royal Children’s Cystic Fibrosis Research Trust was formed in 2000 by a group of parents in conjunction with A/Prof Philip Robinson, Director of the hospitals CF Unit who wish to fund research into Cystic Fibrosis (CF), a life threatening genetic disorder that severely affects lung function and digestion.

 Research projects are based at the Melbourne’s Royal Children’s Hospital (RCH), one of the worlds leading paediatric teaching hospitals, which has more than 300 CF patients under its care.

 As the membership of the Trust is entirely voluntary, every dollar raised goes directly to research.  Since 2000, the Trust has paid the salaries of 11 doctors to undertake full time research into aspects of CF.  It has also funded the trips of 3 internationally recognised CF expects who have shared their knowledge and best practice with RCH medical professionals.

 The Trust is administered by an executive committee (including professionals in accounting, management and law) and all research projects are reviewed and awarded based on the recommendations of a medical review panel led by Assoc Prof Robinson who serves as the Trusts Medical Chairman.